Self-advocacy means speaking up for yourself, being empowered and in control of making your own decisions about your life, learning how to get information so you can understand things that are of interest to you, knowing your rights and responsibilities, developing self-determination, the freedom to live as you choose and make decisions on your own. You know yourself better than anyone else knows you.
There are many Boston-based organizations that are available to you, loved ones and to future patients.
This list is not exhaustive. please email firstname.lastname@example.org with recommendations.